portal-se.de
German information portal on rare diseases, listing registered information providers and care facilities for patients and doctors
Highlights
- New on EvolcAdded 2026-10-30
About portal-se.de
ZIPSE (Zentrales Informationsportal über Seltene Erkrankungen) is an online information portal on rare diseases in Germany. It publishes overviews of rare conditions, guidance on diagnosis, coding and treatment pathways, and a map of care facilities (se-atlas).
The portal is aimed at patients with rare diseases and at physicians. It lists information providers that have registered with the portal and lets users suggest further websites on the topic.
The website states that Germany has 36 centres for rare diseases.
Product: Online information portal with a directory of registered information providers, a care-facility map (se-atlas) and articles on rare diseases.
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Website technologies
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- Apache
- CookieFirst
- Drupal
- Google Analytics 4
- jQuery